Tuesday, September 6, 2011

TPT4KC This Week!

I've decided to do something a little different this week.  In addition to updates about our kids, I've included ways to connect with them!  They most all have FB pages that lead to update websites or websites.  All of them include ways to donate to the families (make sure you look at the FB page "info" section for these).  Several of them are running fundraisers this month, specifically.  I know so many of you have a heart to serve these children and have asked me for a way to do that - so here is a great step in that direction!

Also - September is childhood cancer awareness month.  I knew that childhood cancer is rare - only 12,000 kids a year are diagnosed (and out of the whole pediatric spectrum, that is a very small number).  However I didn't know that pediatric cancer receives the least amount of funding from the big cancer money raisers!  For instance, if you participate in a Relay-For-Life and you raise $1000, only $6 goes towards childhood cancer research.  Those are sobering numbers! 

There are lots of organizations that are fighting this fight, including St. Judes', the Snowdrop Foundation and others.  There is also a new page on FB called "Red Carpet Kids for a Cure" that Lincoln's Daddy started.  It's aim is awareness, so if you are on FB, please "like" it and share it out!  It has stories (including Sophia's) of kids dealing with cancer.  If you know of a group that focuses on raising money for pediatric cancer research, please post the link in the comments (or have another update page for one of our kids to add, please email me!)

My prayer is always that The Lord would cure all cancer.  It pains me everytime I meet someone - adult or child - who is battling this disease.  It pains me that we've been touched by it.  But we are never without hope!  Cancer never has the last word!

Pray The Lord will make His home with all of these families and that until He returns, they will feel His presence, His Goodness and His Grace.  Pray they will see His Hand in the healing of their children and the little moments that show us His Comfort knows no bounds.  Pray for their hearts, their minds and their bodies - and as you look at ways to give, pray He will show you the best way to help them!


Completed Treatment - Pray for them to stay cancer and illness free!
Sophia Vogel (5, soft tissue sarcoma behind left eye) – having port removed Friday! "Team Sophia" on FB.
Anna Grace Dennis (7, ependymoma) - still having headaches, pray for the cause to be found! "Team Anna Grace" on FB.
Rylee Beard (5, Will's tumors in bladder/abdomen) - pray for final scans to show she is remission and stays that way!
Courtney Pette (16, lymphoma) "Team Courtney" on FB
Tristan Smit (3, ependymoma)

Currently In-Treatment
Holden Underwood (1, ALL/MLL) – At TCH with fever and vomiting, has received blood transfusion and seems to be more stable but unfortunately one of his lines is infected (again)!  Please pray he does not need surgery and that his immunity rebounds quickly, as his white blood cell count is nearly at zero.  Pray for relief!  "Holden's Hope" on FB.

Matthew (5, Rhabdomyosarcoma) – Completed his course of radiation, now to the last few rounds of chemo before he completes his treatment in October! Pray for success and illness free during this last round!  "Team Matthew" on FB.

Aiden McSpadden (2, AML relapse) – Praise The Lord!  A perfect 10 out of 10 match was found for Aiden’s bone marrow transplant!  This is huge news!  It will still be a long fight and they have to deal with the realities of day to day life in treatment (infection risk, line issues, fear & anxiety) but they have hope! "Angels for Aiden" on FB.

Brennan Scurlock (1, neuroblastoma) – Completed radiation on Friday!  Still recovering, so pray that is quick but their home life is settling, which is such a blessing!  He is going in for blood work today and they will be admitted on Friday for a round of chemo.  He has struggled with vomiting and generally feeling bad so pray he recovers quickly – especially now that he is crawling and pulling up!! "Brennan Scurlock" on FB.

Grant McTaggart (5, P+ ALL) – The results from his spinal tap and bone marrow tests came back with good reports - Praise God! Pray, as he continues to receive chemo, that he is on the road to remission and stays healthy in school! http://www.prayforgrant.com/

Addison Marshall (18, ALL) - continuing "maintenance" phase of chemo, at home and going to school. He is even playing football! As with all the kids in school, pray for no germs to be caught - but if they are, pray they stay minor! http://www.addisonmarshallcrushcancer.org/index.php

Lincoln Daniel Jones (2, ALL) – Usually has labs and treatment on Mondays, pray all went well! "Pray for Lincoln Daniel Jones" on FB and "Red Carpet Kids for a Cure."

Gabbie Howe (12, brain tumor - ependymoma) – Pray for full recovery from surgery and treatment!

Kaylea Stewart (Leukemia, 6) – Starting to lose her hair now, pray for peace about this and that her maintenance phase of treatment will go smoothly, with no germs caught or issues to deal with!  "Kure for Kaylea" on FB

Ava Caggino (4, ATRT Brain Tumor) – Has 3 hospital visits this week, including simulation for radiation and an MRI.  Pray all goes smoothly with no anxiety during the mask fitting as well as peace during sedation.  "
The Ava Caggino Fight Aganist Cancer Page" on FB

Lucy Weber (4, ALL) - She has a clinic visit today, so pray for good blood counts, cold medicine and to be in-and-out with no issues!  "Team Lucy" on FB.

Ruel Bobet (20, stomach cancer) - continuing chemo at MDA, pray for success! 

Kristina Barrett (9, sarcoma in lungs and arm) – She has recovered from her stomach bug and pray she (and all her siblings), stay germ-free and that her outpatient treatment continues to go well! "Praying for Kristina" on FB,

Mark (10, rhabdomyosarcoma in left hand)

Mark Ochoa (2, Wilm's Tumor)

Natalie Fraker (4, astrocytoma)

Hudson Kadlecek (4, lymphoma) - "Hope for Hudson" on FB.

Patton Jones (3, Burkitt's Lymphoma)

Wyatt (2, ALL)

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