Tuesday, May 1, 2012

TPT4KC This Week!

If there is one word that describes a lot of the updates this week - one word that articulates what these kids need - is ENCOURAGEMENT.  There are a lot of down spirits, it is a reality of life in treatment.  You have weeks where you just can't pick yourself up to be happy.  Some weeks, you are operating in the valley, not on the mountain - you aren't going from strength to strength.  All you can do is just realize your weakness and try your best to get out of bed and face what is coming.  As I laying crying in my husband's arms one night last year, during one of my own "down weeks", I said, "I just feel so sad!"  He said:

It's ok to feel sad.  This situation is sad.

So, when I say encouragement - I don't mean platitudes, I don't mean advice.  I don't even mean the ever present "I'm so sorry."  I would like us to pray for their hearts to be comforted because really, when you are in a down week, what you truly need is not a band-aid to get you through, but a healing salve to will ease the pain.  These families need to know this is hard from the One who went through terrible suffering.  They need to know God sees, hears and understands their pain.  They need to feel His arms around them and even carrying them through this trial.  They need the tangible, real touch of Christ on their minds, spirits and bodies.

I've often found encouragement through song and last Friday, I got another perfect example.  Sometimes, someone else has to articulate how you feel to help you through it - and that is exactly what this song did.  It's by Katrin Young, written for her 7 year old niece who has completed treatment for a brain tumor.  It is just beautiful and you might have already heard it on my or the Team Sophia FB page.  So, as you pray for these families, lifting up their heats as expressed in this song - to the Healer of all Hurts. 

Here is the link to Katrin's exquisite song: http://f.cl.ly/items/0a1L163r1J151g0a2O2r/Butterfly%20-%20by%20Katrin%20v2.MP3.

Let us pray because PRAYER WORKS!

Completed Treatment - Pray for them to stay cancer and illness free!
Sophia Vogel (5, soft tissue sarcoma behind left eye) – Doing great! Next scans scheduled for June 8th!  <"Team Sophia" on FB>
Anna Grace Dennis (7, ependymoma) – Pray for complete relief of headaches! <"Team Anna Grace" on FB>
Rylee Beard (5, Will's tumors in bladder/abdomen) – Doing great!
Matthew Lucas (5, Rhabdomyosarcoma) – Pray for his port removal to go smoothly and continued cancer free diagnosis! <"Team Matthew" on FB>
Gunnar Peterson (5, Wilm’s Tumor) Going great! <”Gunnar’s Team on FB”> 
Aiden Rideout (4, Non-hodgkins lymphoma) He hits 6 months in remission tomorrow! <”Prayers for Aiden” on FB>
Gabbie Howe (12, ependymoma)  
Grant McTaggart (5, P+ ALL) Bone marrow tests should be coming up this month – pray he is all clear! <http://www.prayforgrant.com/
Callie Cheer (3, AML) – Doing great!  <”Cure for Callie” on FB> 
Izzy Slot (3, angiosarcoma) Doing better!<”izzyslot” on carepages.com and “Princess Izzy’s Court” on FB> 
Zoe Austin (7, Brain Tumor) – In Remission, but struggling with effects from radiation – pray for complete healing of all parts of her brain!
Hunter (2, Ewing Sarcoma) – Scans showed he is all clear and no signs of cancer!  Pray for the side effects from radiation to be healed! <”Cure Baby Hunter” on FB> 
Nicky George (2, Ependymoma) –Next scans this month – pray they all go well, all is clear and hearing in his left ear has not been affected!  www.nickybear.com
Courtney Pette (17, lymphoma) – Doing great!  <"Team Courtney" on FB>
Maddie Briscoe (7, neuroblastoma) – Her last scans were all clear!  In Remission! <”Prayers for Maddie Briscoe” on FB> 
Patton Jones (4, Burkitt's Lymphoma) – http://www.caringbridge.org/visit/pattonjones
Natalie Fraker (5, astrocytoma) – Her next MRI is May 21st so be praying all is well! <” PRAYERSFORNKF” on carepages.com> 
Tristan Smit (3, ependymoma) – Doing great!
Mark Ochoa (2, Wilm's Tumor)

With The Lord (Please pray for their families)
Ruel Bobet – Completely healed on Saturday, February 25th, 2012.  Continue to pray for his family, they need strength only The Lord can provide! <”Sandy Bobet” (his Mom) on FB>
Kory Krowell – Went to be with Jesus on 11/18/11.
Wesley (1 month old, Rhabdomyoma) – Earned his angel wings Monday, March 26th, 2012.  <”The Battle for Baby Wes” on FB>
Daniela Owens (9, Ewing Sarcoma) – Jesus called her home on Friday, March 23rd, 2012.  <”Prayer for Daniela” of FB>
Brennan Scurlock (1, neuroblastoma) – Jesus brought him into His loving arms Wednesday, April 25, 2012.  <"Brennan Scurlock" on FB> 

Fighting Illness and/or Inpatient 
Makayla (4, DIPG) – Starting 2nd week of radiation – pray for all to go well and her cold to clear quickly! <”Makayla’s Miracle Makers” on FB>
Thomas Valerio (11, rhabdomyosarcoma) Being admitted for his last chemo round today!  Pray all goes well and this sets him up to be cancer free for life!
Layton (3, ALL) In hospital as a result of a reaction to the new chemo she received last week – pray for wisdom for her medical team and complete healing!  <”Prayers for Layton” on FB>

Raelynn (5, ALL) Pray for her body to recover and no more side effects to sidetrack her!  <”Prayers for our Sweet Baby Rae” on FB>
Katie Wagner (15, Rhabdomyosarcoma) In hospital with a fever, pray for her body to respond and her spirits to lift! <Wagner Family support” on FB>
Aiden McSpadden (3, AML relapse) Still no relief from graft vs. host issues – starting a new medication this week – pray it works! <"Angels for Aiden" on FB>
Carli Simmons (2, Brain Tumor) Inpatient at TCH, receiving treatment
Preston Winslow (4, AML) Pray for recover and fully conditioning to happen before his bone marrow transplant and for the doctors to be extra diligent in their care for him!! www.prestonsleague.com
Eli Dirr (5, Relapse of AML) –After surgery last week – he is doing much better.  Received last chemo yesterday and will start his radiation simulation today.  Pray for his spirits, they are very low missing his siblings right now. <”Warrior Eli” on FB>
Victoria Feldman (6, Medulloblastoma) Inpatient chemo round that started yesterday – pray for no side effects and quick recovery at home! <”Victory4Victoria” on FB>
Braeden Estes (18, Ewings Sarcoma) Biopsy today!  Pray for a great outcome! <http://www.caringbridge.org/visit/braedenestes>

In Treatment
Wes Pak (5, Neuroblastoma) – Pray for all to work out for his trip to NY for his next pahse of treatment. <”Wes’ Fight against Neuroblastoma” on FB>
Cameron Lindsay (20, sarcoma) – Pray he recovers from his recent round of chemo and has no side effects this time!
Paige Poe (16, Lymphoma) – Pray she can recover fully from 3 days of chemo last week and has no side effects!
Lincoln Daniel Jones (3, ALL) – Doing better but pray for his appointments this week to go well! <"Pray for Lincoln Daniel Jones" and "Red Carpet Kids for a Cure" on FB> 
Jasmine (3, Wilms Tumor) – Had bloodwork yesterday and did great!  Pray for a great week of recovery! <”prayers for Jasmine” on FB>
Tynan Chapa (5, ALL) Home and doing better – pray for the next steps to go well!  <”Tynan’s Crusade” on FB>
Sander Linnet (5, Neuroblastoma relapse) – Pray for his treatment to be a success and his family would come to know the power of the Lord through this experience!
Riley Speed (7, Ewing’s Sarcoma) – Pray for wisdom and for treatment to go as planned! <”Riley’s Road to Recovery” on FB>
Kaylee Atkins (6, ALL) – Her body is having a lot trouble recovering from the chemo – please pray for healing so her treatment will not be delayed any longer and for encouragement in her parents spirits! <”Praying for Kaylee” on FB>
Devin Duncan (18, Leukemia) – pray she is fully recovered and continue her treatment without any interruption or illness, and that she gets into the college of her choice - UT! < Www.devinduncan112.blogspot.com>
Lucy Weber (3, ALL) – Receives chemo and steroids tomorrow, pray for it to be smooth week and for the let down from steroids to be minimal! <"Team Lucy" on FB> 
Logan Sinclair (5, Anaplastic Medulloblastoma) – Pray for his therapy to get better and easier on him – pray for his spirits to lift as well! <”Pray for Logan Sinclair” on FB> 
Nate Dinoffira (2, Neuroblastoma) Finished radiation and is having a lot of scans and tests run in preparation for his antibody therapy that starts on May 10th.  Pray for his strength and the spirits of his family!  <http://supernatedinoffria.blogspot.com/>
Max Low (12, Leukemia) <”Mighty Max Low” on FB>
Lexie Synder (5, ALL) Her blood transfusion helped, but she has low counts and has a stomach bug – pray for relief and for her body to recover! <”Lexie vs. Leukemia” on FB>
Liam Wilson (1, neuroblastoma) There has been no change in the tumor, and they are evaluating surgery options so pray for wisdom on which drugs to try next as well as for the right surgeon for the job! <”Prayers for Liam Wilson” on FB>
Holden Underwood (2, ALL/MLL) – Pray for his counts and treatments to continue to go well! <"Holden's Hope" on FB> 
Lance McClain (ALL) – Pray he continues to do well! <”TeamLance McClain” on FB> 
Ava Caggino (4, ATRT Brain Tumor) Doing better, pray her energy and appetite recover fully! <"The Ava Caggino Fight Aganist Cancer Page" on FB> 
Charlie Harris Beard (1, Leukemia) Pray for him to feel well and stay on track! <”Help save Baby Charlie Harries Beard” on FB> 
Wyatt Foster (2, ALL) Pray he recovers and for the spirits of his parents as this week is a year ago from his diagnosis!  <”Wyatt’s Prayer Warriors” on FB>
Kristina Barrett (9, sarcoma in lungs and arm) – No new growth or new tumors from her scans – PTL! <"Praying for Kristina" on FB> 
Shelby Adams (Langenhans Cell Histiocytosis) – Cancer is still there but it is responding.  Pray for complete healing!  <”Prayers for Shelby Adams” on FB>
Barrett Blake (5, Rhabdomyosarcoma) http://www.caringbridge.org/visit/barrettblake
Zayley Oliver – <”Prayers for Zayley Jade Oliver” on FB> 
Addison Marshall (18, ALL) <addiecake on Twitter
Taylor Porter (15, AML) <”Team Taylor – Taylor Porter” on FB> 
Kaylea Stewart (ALL, 6) –<"Kure for Kaylea" on FB> 
Hudson Kadlecek (4, lymphoma) - <"Hope for Hudson" on FB> 
Logan Brant - Please pray for wisdom and healing!  <“Team Logan” on FB>
Kylie Overton (2, Brain Tumor) – <”Prayers for Baby Kylie Overton” on FB> 

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