Tuesday, September 27, 2011

TPT4KC This Week!

I'm having a hard time with this list this morning.  Maybe it's being so close to what Anna Grace and Jolynne went through yesterday.  Maybe it's the fact that we have 3 new kids on the list and others are struggling.  Maybe it's the lack of a good night's sleep for the past 2 nights.

Either way, it is a struggle to type these updates.  I'm back in that place with each and every one of these sweet families.  I wish I could hug all their Mommies and know for certain each one of them will be fine.  We are a month out from Sophia's final results and I've been ok.  But fear tagged along with me all day yesterday.  This journey is so hard.  While we've seem to transition back to normal life, the reality of the fight we are still in, is hitting me so hard.  There is so much uncertainty.  The stress these parents are under, the things their children must endure is excruciating.  It is for any family going through cancer.  

Sorry to be a downer this morning.  :)

I keep thinking of that line in Francesca Battistelli's new song "Motion of Mercy": 

Living for the Lost
Loving till it Hurts
No Matter what the cost 
Like You loved me first.

The only thing I know how to do is pray and to love, even and especially when it hurts.  I have to ask The Lord to remove fear from all these families hearts (including my own); to heal their children; to comfort them, especially when the situation is full of side-effects and issues.  I also pray The Lord would just hurry up and come back so we don't have to endure this any more.  

Come quick, Lord - we need You!

I know.  I know.  I know He is doing something about every single child on this list.  I know His heart is just as heavy as mine.  I know He hates cancer as much as all of us.  So, I have to go back to the beginning.  The verse I clung to when Sophia was diagnosed and is on the back of our Team Sophia shirts:
Let us not grow weary of doing good, for at the proper time we will reap a harvest if we do not give up. (Galatians 6:9)
I want to see a harvest of healing.  I want to see a harvest of peace.  I want to see a harvest of hope.  And it all starts with  the seeds of prayer.  Because....


Completed Treatment - Pray for them to stay cancer and illness free!
Sophia Vogel (5, soft tissue sarcoma behind left eye) – Prayers for health and to get over allergies soon!  <"Team Sophia" on FB> 

Anna Grace Dennis (7, ependymoma) - Anna's MRI showed a small area that will need to be watched. Doctor says it is probably not disease but may be a result of radiation.  They are encouraging her Mommy to find a pediatric neurologist and gastroenterologist for ongoing care.  Please pray the area heals completely with no complications and that Anna will remain cancer free.  Also pray The Lord will show them the exact right doctors He wants her with from here on out! <"Team Anna Grace" on FB>

Rylee Beard (5, Will's tumors in bladder/abdomen) – Her port comes out today so pray for ease of surgery and a super fast recovery!

Courtney Pette (16, lymphoma) - Follow up scans last week showed no cancer activity and the mass continues to shrink!  <"Team Courtney" on FB>
Tristan Smit (3, ependymoma)

Mark Ochoa (2, Wilm's Tumor)

Currently In-Treatment
Holden Underwood (1, ALL/MLL) – Received chemo yesterday, pray his health stays good and his body adjusts and responds! <"Holden's Hope" on FB>

Matthew (5, Rhabdomyosarcoma) – Completed treatment last week!  He will get blood counts for a few weeks, then final, end of treatment scans.  Pray The Lord has healed him!  <"Team Matthew" on FB> 

Aiden McSpadden (2, AML relapse) – Had a great day yesterday, although the bone marrow transplant has been postponed till he gets over his cold.  The family is anxious to get start so pray for peace while they wait for The Lord’s perfect timing and peace throughout this new phase of their journey!  <"Angels for Aiden" on FB>

Brennan Scurlock (1, neuroblastoma) – His blood counts are still nonexistent, so he received blood products yesterday.  He has many sores in his mouth and throat, so please pray for comfort and healing; and that his body will bounce back quickly! <"Brennan Scurlock" on FB>

Lincoln Daniel Jones (2, ALL) – Received medicine and blood products yesterday.  Pray his body recovers quickly and does not develop any reaction to blood products for future needs.  <"Pray for Lincoln Daniel Jones" and "Red Carpet Kids for a Cure" on FB>

Gabbie Howe (12, brain tumor, ependymoma) – Pray for full recovery from surgery and radiation!
Gunnar Peterson (5, Wilm’s Tumor) Diagnosed just over 10 days ago and last Friday, had one of his kidneys, a small piece of colon and an 11 cm tumor removed.  He is recovering well, with his pain being managed by an epidural.  He is already up and walking around the floor!  His protocol will include chemo and radiation but how long/how much, will depend on what the tissue results look like.  He will be going through a lot of what Rylee went through on her 2nd round of treatment.  Pray for this family, they are receiving tremendous support but are from Louisiana, so this will be an out of town experience.  They are still in shock, so pray they will cling to The Lord today and throughout this process!  <”Gunnar’s Team on FB”>

Kory Crowell (12, Tumor on Adrenal gland) Had surgery on September 2nd to remove it and has been dealing with complications this last week.  Please pray the fluid build up in his chest recedes and that the plan to transport him home for care will go smoothly!  This family has been through so much, please The Lord heals his body and mind and spirit completely!  <”lil_dude on carepages.com”>

Ava Caggino (4, ATRT Brain Tumor) – Started her course of radiation and is having disorientation and vomiting following the anesthesia.  Pray she adjusts quickly, her sight restored and she will be healed!  <"The Ava Caggino Fight Aganist Cancer Page" on FB>

Lance McClain (ALL) – In maintenance phase of treatment at TCH and responding well!  Pray for continued good health, help his mom manage their full family and find the job The Lord wants her to have and that Lance will be healed! <”TeamLance McClain” on FB>

Lucy Weber (4, ALL) – The results were ok and they will continue with treatment.  Thankfully, she is coming off the steroids for now and will have another check up in 4 weeks!  <"Team Lucy" on FB>

Izzy Slot (3, angiosarcoma) She was diagnosed in August and received a new liver a few weeks ago.  They are currently checking her levels for rejection.  Pray this does not happen!  They have chosen not to do chemo in order to protect her health (as well as there is no data stating that it would help) but to continue on anti-rejection course.  She will receive scans monthly.  She is on heavy doses of steroids and the family is still shell-shocked (as well as her older sister is having a hard time adjusting).  Please pray for the peace that passes all understanding to cover them! <"Izzyslot" on carepages.com">

Ruel Bobet (20, stomach cancer) - continuing chemo at MDA, pray for success! 

Kristina Barrett (9, sarcoma in lungs and arm) –She will continue on clinical trial in outpatient – pray for her to be cancer free!  <"Praying for Kristina" on FB>

Grant McTaggart (5, P+ ALL) <http://www.prayforgrant.com/>

Taylor Porter (15, AML)

Kaylea Stewart (Leukemia, 6) – <"Kure for Kaylea" on FB>

Mark (10, rhabdomyosarcoma in left hand)

Natalie Fraker (4, astrocytoma)

Hudson Kadlecek (4, lymphoma) - <"Hope for Hudson" on FB>

Patton Jones (3, Burkitt's Lymphoma)

Wyatt (2, ALL)

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