Tuesday, January 24, 2012

TPT4KC This Week!

It feels like the rug was pulled out from under you.  Only there are a bunch of hot coals where the rug used to be.
That was my husband's wise comment on how it feels to go through the roller coaster of treatment.  We were discussing one of our families on this list, we received some very unexpected and devastating news yesterday when they thought they were coming to the end of treatment for their sweet little boy.  Dave's comment is exactly how I feel.  The most painful part of being in this ministry to pray for these families are the ups and downs.  We have, on one hand, families that are rejoicing as their kids recover and go into remission.  We have others who are reeling from the word "Relapse."  I feel the same way I did after the Harry Potter Ride at Universal Studios.

Sometimes, I just feel like I'm going to throw up!

When I feel this way, I always come back to the privilege of being a part of these families' lives.  Some of them I know very well, some I've never met other than online; some I just get updates from caringbridge that a friend of a friend sent me.  And sometimes, I know nothing at all, just a name and a diagnosis.  But I am (we are) a part of the fabric of these families' lives, whether they know it or not, because we take the time to lift them to Heaven, in the midst of the most difficult experiences they will probably ever face. 

It continually blesses me, every Tuesday morning (which used to be the worst day of the week for us because it meant chemo or counts or something treatment related), people stand with me before God, interceding for these families.  You are truly what keeps this list going.

There in lies the challenge.  I want to encourage you to further the love.  I'd like to challenge you to invite one person this week to join our prayer team - whether by signing up for emails on this blog or liking the page on FB.  Just have them make their presence known.  When I started this, I had a vision of this prayer connection going global.  It has - we have people from all over the world praying for these kids.  And if you already do pray on Tuesdays for these families, leave a comment here or on the FB page. 

I believe in funding research, I believe in medical wisdom.  But I know that only God can provide these families everything they need and it starts with prayer.  I'm still hungry for more people to storm the gates of Heaven when the situations are at their worst; and to praise and worship Jehovah Raphe when the news is at its best.  Please ask a friend.  Please share your story about how praying for these kids has changed you and invite them to change someone else.

Let's grow our prayer team because PRAYER WORKS!

Completed Treatment - Pray for them to stay cancer and illness free!
Sophia Vogel (5, soft tissue sarcoma behind left eye) – Next Scan March 2nd.  <"Team Sophia" on FB>
Anna Grace Dennis (7, ependymoma) – Doing great!  Pray for headaches and stomach aches to go away completely! <"Team Anna Grace" on FB>
Rylee Beard (5, Will's tumors in bladder/abdomen) – Doing great!
Matthew Lucas (5, Rhabdomyosarcoma) – Praise The Lord, scans last week showed no new growth!!  <"Team Matthew" on FB>
Gabbie Howe (12, ependymoma) – Pray for scans to be free and clear on next scans later this month!
Hunter (1, Ewing Sarcoma) – In REMISSION & CANCER FREE!  Pray that he stays that way!  <”Cure Baby Hunter” on FB> 
Nicky George (2, Ependymoma) – Currently in remission and next scans on February 23rd.  Please pray he will remain cancer free!
Courtney Pette (16, lymphoma) –<"Team Courtney" on FB>
Tristan Smit (3, ependymoma)
Mark Ochoa (2, Wilm's Tumor)

Fighting Illness and/or Inpatient 
Brennan Scurlock (1, neuroblastoma) – He has relapsed and his family is devastated.  He is having surgery today to biopsy the tumor blocking his abdomen and then they will determine course of treatment.  Pray for peace, wisdom, steady hands and for The Lord to work a miracle! <"Brennan Scurlock" on FB> 
Izzy Slot (3, angiosarcoma) Please pray for correct diagnosis on fluid and that they will find ways to increase her nutrition that will help her recover FAST! <”izzyslot” on carepages.com and “Princess Izzy’s Court” on FB> 
Thomas Valerio (11, rhabdomyosarcoma in left hand) Should be finishing 5 day inpatient chemo round today – pray for NO SIDE EFFECTS and restful time of recovery at home!
Nate Dinoffira (2, Neuroblastoma) Inpatient for a fever and having a new line placed Thursday, so pray for no more bacteria to grow on the next cultures!  Also – our prayers for his appetite were answered!  Thank you Lord – he is eating great and gaining weight! <” SuperNate Dinoffria” on FB and http://supernatedinoffria.blogspot.com/)
Logan Sinclair (5, Anaplastic Medulloblastoma) – Getting counts today and appointments all day – preparing for inpatient chemo admission on Thursday! <”Pray for Logan Sinclair” on FB> 
Callie Cheer (3, AML) – Still inpatient but has finished chemo!  They get results mid-February, so pray she is healed!  <”Cure for Callie” on FB> 
Preston Winslow (4, AML) Getting home passes but they are still struggling with decisions on treatment.  Pray for wisdom, straight from The Throne – for God’s will to be clearly done in the life of this little boy!  www.prestonsleague.com
Carli Simmons (2, Brain Tumor) Inpatient at TCH, receiving treatment

Receiving Treatment this week 
Ruel Bobet (20, stomach cancer) – Still struggling with pain and treatment for the cancer is daily.  Please pray The Lord will go before them on every appointment so he will not be subjected to such long waits that exhaust him.  Pray for his appetite to return so some of the side effects he is experiencing will be remedied!  <”Sandy Bobet” (his Mom) on FB>
Katie Wagner (15, Rhabdomyosarcoma) Received outpatient chemo yesterday and her story continues to touch people, bring them to The Lord and display His glory!  Praise The Lord for shining His light through them in such a dark time! <Wagner Family support” on FB>
Tynan Chapa (5, ALL) Had BMT 4 months ago, but the cancer cells have returned.  Pray for this family as they enter the roller coaster of treatment again and that they have faith he will be healed!  Praise God for his wonderful spirit! <”Tynan’s Crusade” on FB>
Aiden McSpadden (2, AML relapse) Bone marrow aspiration this Thursday, pray for 100% bone marrow donor cells! <"Angels for Aiden" on FB> 
Barrett Blake (5, Rhabdomyosarcoma) Received scans last week and the tumor is stable!  Pray The Lord will allow the medicine to shrink it for the next scans!  http://www.caringbridge.org/visit/barrettblake
Lincoln Daniel Jones (3, ALL) – Had low counts last week that made him feel awful.  Pray he will recover and praise God it did not develop into an infection!  <"Pray for Lincoln Daniel Jones" and "Red Carpet Kids for a Cure" on FB> 
Lucy Weber (3, ALL) – At the clinic today for chemo and counts, pray for no issues with either!  <"Team Lucy" on FB> 
Holden Underwood (2, ALL/MLL) – Turned two on Friday! Possible clinic and continuing oral chemo this week! <"Holden's Hope" on FB> 
Gunnar Peterson (5, Wilm’s Tumor) Clinic appointment for counts and chemo tomorrow – pray all continues to go very well and that his side effects will be minimal to none!  <”Gunnar’s Team on FB”> 
Zayley Oliver –Pray she stays healthy and that cancer is beaten back! <”Prayers for Zayley Jade Oliver” on FB> 
Lance McClain (ALL) – Got spinal chemo and a bone marrow aspiration today to check for any cancer cells.  PRAISE THE LORD, there are none!  Pray he continues to fight well and the doctors find an answer for the pain he’s had! <”TeamLance McClain” on FB> 
Addison Marshall (18, ALL) – continues outpatient, maintenance chemo  <addiecake on Twitter
Grant McTaggart (5, P+ ALL) Is on oral chemo for the next 2 weeks.  Pray for his parents to have peace that he is cured and he will stay that way! <http://www.prayforgrant.com/
Charlie Harris Beard (1, Leukemia) Receiving outpatient treatment this week, Praise The Lord! <”Help save Baby Charlie Harries Beard” on FB> 
Logan Brant - Please pray for wisdom and healing!  <“Team Logan” on FB>
Kylie Overton (2, Brain Tumor) – she has started chemo again, but the protocol from here on out needs divine intervention to keep the tumors from coming back and no long term effects on her body and mind.  Please Lord, come quickly into this situation! <”Prayers for Baby Kylie Overton” on FB> 

On-break or has Scans this week  
Maddie Briscoe (7, neuroblastoma) – Doing great! <”Prayers for Maddie Briscoe” on FB> 
Max Low (12, Leukemia) At home, on feeding tube and dealing with a lot of pain.  Please pray for a lessening of the complications from all the meds he has to take!<”Mighty Max Low” on FB>
Aiden Rideout (4, Non-hodgkins lymphoma) Feeling good and pray he stays in remission! <”Prayers for Aiden” on FB>
Braeden Estes (17, Ewings Sarcoma) Started his chemo round, only 14 more treatments to go after this week!  Pray he will stay healthy and no side effects!  <http://www.caringbridge.org/visit/braedenestes>
Shelby Adams (Langenhans Cell Histiocytosis) – Pray her body responds and the cancer is beaten, with no ill side effects! <”Prayers for Shelby Adams” on FB> 
Kristina Barrett (9, sarcoma in lungs and arm) – Pray The Lord will show how to relief her abdominal pain!  <"Praying for Kristina" on FB> 
Ava Caggino (4, ATRT Brain Tumor) Resting at home, prepping for next chemo round.  <"The Ava Caggino Fight Aganist Cancer Page" on FB> 
Daniela Owens (9, Ewing Sarcoma) – Doing great at home! <”Prayer for Daniela” of FB> 
Natalie Fraker (5, astrocytoma) – pray for her body to get strong enough to breath without the ventilator and for her next scans, in early February, to be all clear!  <” PRAYERSFORNKF” on carepages.com> 
Taylor Porter (15, AML) <”Team Taylor – Taylor Porter” on FB> 
Kaylea Stewart (Leukemia, 6) – Back at school and feeling well!  Pray she is finally cured of her cancer! <"Kure for Kaylea" on FB> 
Hudson Kadlecek (4, lymphoma) - <"Hope for Hudson" on FB> 
Patton Jones (3, Burkitt's Lymphoma) 
Wyatt (2, ALL)

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